تدوین مدل مراقبت تسکینی کودکان بر اساس دیدگاه کادر پزشکی در ایران

نوع مقاله : مقاله پژوهشی

نویسندگان

1 مرکز طبی کودکان، دانشگاه علوم پزشکی تهران، ایران

2 گروه پرستاری کودکان و روان پرستاری، دانشکده پرستاری و مامایی- مرکز تحقیقات مراقبت‌های پرستاری، دانشگاه علوم پزشکی ایران، ایران

3 گروه بیماری های کودکان، دانشکده پزشکی، دانشگاه علوم پزشکی ارومیه، ایران

4 مرکز تحقیق و توسعه سیاست‌های دانشگاه، دانشگاه علوم پزشکی تهران، ایران

چکیده

مقدمه و هدف: مراقبت تسکینی در عرصه کودکان شامل مراقبت فعال از جسم و ذهن کودک و همچنین حمایت از خانواده را شامل می شود. هدف این پژوهش ارائه مدل ضرورت ارائه مراقبت تسکینی برای کودکان بر اساس دیدگاه کادر پزشکی و پرستاری در ایران بود.
مواد و روش ها: در این مطالعه توصیفی تحلیلی جهت ارائه مدل با در نظر گرفتن هر یک از حیطه ها/عوامل مطرح شده از تحلیل عاملی استفاده شد. تحلیل عاملی اکتشافی، با استفاده از آزمون های کیزر مایر (KMO) و بارتلت (BT) انجام شد و مدل نیازسنجی ارائه گردید. جهت سنجش ضرورت ارائه خدمات مراقبت تسکینی برای کودکان از پرسشنامه پژوهشگر ساخته انجام شد. این پرسشنامه حاوی 28 سوال در سه حیطه یا عامل (حیطه مربوط به کودک با 9 مورد، 12 مورد در حیطه مرتبط به خانواده و 7 مورد حیطه مربوط به سلامت ملی) طراحی شد. با استفاده از نرم افزار SPSS 21 تحلیل آماری انجام شد.
نتایج: گویه "توجه به مفاهیم اخلاقی در برخورد با خانواده در سطح خانواده" دارای بیشترین میانگین نمره بود (28/0±4/4). گویه‌های "تلاش برای داشتن مرگ آرام در مراحل پایان زندگی در حیطه کودک " و "بهره‌مندی از خدمات تسکینی برابر در سطح ملی" به ترتیب با میانگین نمرات 52/0±2/4  و 4/0±1/4 در مراتب دوم و سوم از این ضرورت بودند که با توجه به این نتایج، مدل مراقبت تسکینی تنظیم و طراحی شد.
نتیجه‌گیری: با توجه به نتایج گویه‌های پرسشنامه، مدل ضرورت مراقبت تسکینی طراحی شد. هم چنین ضرورت ارائه مراقبت تسکینی برای کودکان در این مدل تأیید گردید.

کلیدواژه‌ها

موضوعات


عنوان مقاله [English]

Development of a Pediatric Palliative Care Model based on the Perspectives of Iranian Medical Personnel

نویسندگان [English]

  • Nazi Dezvaree 1
  • Marjan Mardani Hamooleh 2
  • Somayeh Rostamli 1
  • Malihe Kadivar 1
  • Marjan Kohnavard 3
  • Azadeh Sayarifard 4
1 Neonatal Nurse, Children’s Medical Center, Tehran University of Medical Sciences, Tehran, Iran
2 Nursing Care Research Center, Department of Psychiatric Nursing, Iran University of Medical Sciences, Tehran, Iran
3 Department of Pediatrics, School of Medicine, Urmia University of Medical Sciences, Urmia, Iran
4 Community and Preventive Medicine specialist, Community Based Participatory Research Center, Iranian Institute for Reduction of High-Risk Behaviors, Tehran University of Medical Sciences, Tehran, Iran
چکیده [English]

Background and Objective: The pediatric palliative care (PPC) includes active care of the child's body, soul, and mind, as well as family support. The purpose of this study was to develop a model for providing pediatric palliative care based on the point of views of the Irania nurses and the physicians in Iran.
Materials and Methods: The objective of this descriptive analytic study was to develop a model for PPC and to confirm each of the factors presented in the model. Factor analysis was performed using Keizer-Meier (KMO) and Bartlett (BT) tests. A researcher-made questionnaire was used to measure the necessity of providing PPC services. This questionnaire contained 28 questions in three areas or factors (9 items about the children, 12 items related to the family issues, and 7 items related to national health), and the statistical analysis was done by using SPSS 21.
Results: The item "Attention to moral concepts in dealing with the family at the family level" had the highest mean score (4.4±0.28). The items "Trying to have a peaceful death in the end stages of life in the child's area" and "Benefiting from equal palliative services at the national level", respectively with average scores of 4.2±0.52 and 4.1±0.4 in the ranks, at the second and third of this necessity. The PPC model was developed based on the results of this questionnaire.
Conclusion: According to the result of the questionnaire items used in this study, the palliative care necessity model was developed. It is also concluded that providing PPC in Iran is necessary.

کلیدواژه‌ها [English]

  • Iran
  • Nurse
  • Physician
  • Pediatric
  • Model
  • Palliative Care
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